Frequently Asked Questions



  • Is my information kept confidential?
    • Yes. This site is secure, and any data that is distributed for research purposes is coded with an ID number rather than any specific identifiers.
  • Can I change from paper to electronic enrollment?
    • Yes. Please contact the NARCOMS Administrative office by phone or email and we will assist you.
  • How do I change my address or information?
    • Click here for an online form to change or update your information. You can also call the NARCOMS Administrative office at 1-800-253-7884
  • How do I know if I am enrolled in the Registry?
    • If you are unsure if you are enrolled in the Registry, please contact our office at 1-800-253-7884 or MSregistry@narcoms.org before beginning the process again.
  • Is there someone I can talk to about the enrollment or update forms?
    • We are happy to help you with any step of the process. Feel free to contact us by phone, email or fax.
  • Is there a cost to enroll or get information from the Registry?
    • There is no cost to take part in the NARCOMS Registry. Researchers looking to use NARCOMS data, please click here. To find publications using data from the NARCOMS Registry, please click here.
  • How is the Registry funded?
    • The NARCOMS is a project of the Consortium of Multiple Sclerosis Centers and is supported by grants and in-kind services from United Spinal Association, Paralyzed Veterans Association (PVA), and the National Multiple Sclerosis Society. Additional support has been provided by unrestricted grants from the following pharmaceutical companies: Berlex, Biogen, Serono, and Teva Neuroscience.